ObamaCare for All But this Young Girl denied a lung because of her age? The Erosion of Humanity.

June 3, 2013

Save this girl

The father of a 10-year-old Pennsylvania girl fighting to get the lung transplant she needs but has been denied because of her age called Health and Human Services’ Secretary Kathleen Sebelius’ decision to review child transplant policies a decision to do “not much of anything.”

Sarah Murnaghan, 10, would be at the top of the adult lung transplant list if she were 12, because she only has weeks to live and a lung transplant would as-good-as cure her of cystic fibrosis.

If she doesn’t get new lungs, her doctors say, she might not even make it to 11.

Sarah’s father, Fran Murnaghan, of Newtown Square, Pa., told ABC News Sunday that Sebelius’ mandate for review of transplant policies would not deal with current cases in a timely manner, nor deal with what he characterized as an unequal system that discriminates against children younger than 12.

“Sarah is being left to die,” Murnaghan said. “Not only Sarah, but there are many other children in the same situation.”

“[Sebelius] clearly has the authority to do something now, and she has decided to do, to be honest, not much of anything,” he said. “In my opinion, she has kicked the can down the political road.”

The Murnaghan family is fighting a little known organ transplant policy that is effectively pushing Sarah to the bottom of the adult transplant waiting list because it mandates that adult lungs be offered to all adult patients before they can be offered to someone under 12 years old.

“Secretary Sebelius’ decision to not exercise her very clear authority under the law to intervene and mandate a variance that would help save Sarah’s life is devastating,” the family said in a prepared statement.

Sarah’s family is asking the public to “consider naming our child an organ recipient should someone lose the life of a loved one in the very near future,” they said in the statement.

“Our little girl, who loves writing music, making crafts, and playing with her siblings can honor someone’s life by living on herself,” they wrote.

Under the existing policy, children like Sarah are forced to wait for a lung transplant, despite her life-threatening illness.

In a letter sent Friday to the Organ Procurement and Transplantation Network, Sebelius asked for the review to consider changing the policy to make more transplants available to children, The Associated Press reported.

Sebelius called the incongruity between donors and children in need of transplants “especially stark.”

There were only 11 lung donors between 6 and 10 years old and only two lung transplants in that age group in 2012, according to an Organ Procurement and Transplantation Network statement.

“We are not asking for preference for Sarah, we are asking for equality,” Sarah’s mother, Janet Murnaghan, said in an earlier press release. “We strongly believe Sarah should be triaged based on the severity of her illness, not her age.”

Patients with cystic fibrosis, a genetic condition that damages the lungs, have an average life expectancy of 31 years old, said Dr. Devang Doshi, a pediatric lung specialist at Beaumont Children’s Hospital in Michigan who has not met Sarah. But if they get a lung transplant, the condition is essentially cured.  Read Full Story

 

UPDATE: A judge has cleared the way for this darling to be placed on the adult doners list.  Which does not mean she gets the lungs but she is now not blocked from receiving them. I will continue to pray for her to be allowed to live a long and wonderful life.

~~~~

Please bear with me here this story has brought tears to my eyes and an ache to my heart. As a young life fades, Health and Human Services’ Secretary Kathleen Sebelius refuses to use her power to save this young girl and likely save this family devastating heart break. Doctors say with the lung this girl has a great chance at a full life and yet as usual Kathleen Sebelius is more concerned about red tape than showing an ounce of humanity. What has happened to this country when the people running it are more concerned about blow-back  instead of saving a little girls life? I am outraged at the pathetic reasoning of Kathleen Sebelius. I understand there are others in line, others that have known much more life than this little girl, she however needs a break, a chance, a life, and government guidelines apparently cannot be bent to save this lovely little girl? Really is this what America has become? I am fighting here to control my language because this truly strikes at the heart of what makes America great! Please take this post and re-blog it on every blog you can find. Lets all band together to apply the pressure needed to save this lovely life!

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21 Comments

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  1. Thanks Means I am committed to keeping this story alive and this girl if possible.

  2. Thank you very much =)

  3. Consider it done..reblogged as soon as I got your message. Let’s pray someone does something in time to save this child.

    • Yes the news said today the family has filed a lawsuit requesting emergency action. With a new lung who knows what she can grow up to be but it is my belief she should get the chance to show us. It is a very emotional situation to say the least.

      • Just sent an update to you, the judge granted the emergency action. Thanks for letting us know about this child’s need!

      • Great news!!! I had to take a minute here to compose myself this is so great! I am sure we were not the only Americans up in arms about this. She is not out of the woods but news reporting thousands upon thousands spoke out all across America.

      • At least now she gets a fair shake at those lungs! And, yes, I love when Americans step up to the plate and say, “We Care!”

      • So true and that is what her parents wanted. Yes I too love it when Americans come together and open their hearts.

  4. Reblogged this on Grandma Says.. and commented:
    Please reblog to let people know of this child’s needs…Can’t something be done?

  5. Hey, my friend. Just saw on the news that a judge reversed OBT’s policies and the little girl is now on the adult waiting list. Also, there are many petitions on Social Media supporting the Murnaghan’s and their search for lungs for their daughter. I’d like to say that the I was not aware before this case came to light of the restrictions the OBT enforces on the eligibility of children or adults who need organ transplants.

    I must wonder if Sebelius might have acted quickly if it was a member of her family!

  6. This is very sad. There are not enough American’s who donate organs for transplant and HHS and Insurance companies I am sure are pleased because they will “compassionately” be willing to let people die due to the costs associated with performing transplants. Its a losing game for those need of transplants.

    While I am old I have done a full body donation. Since I am old I am sure that my body will be used as a research tool. And that is not a bad thing.

    My Brother was denied a transplant due to his age as well.

  7. strawberryquicksand June 15, 2013 — 9:17 pm

    Reblogged this on Strawberryquicksand and commented:
    Not being an American, I don’t really know the ins and outs of what has been dubbed “Obamacare”. I like Obama (sorry, I know there are plenty who don’t. If it makes you feel any better, I hate Julia Gillard…) but I can’t believe that a sick little girl is being denied a lung due to her age, not her level of illness. Please read (and reblogg if you feel like it) this post as it illustrates how amazingly obtuse and unfeeling some people can be, and how one person could potentially save a life, should she simply deign to.

  8. strawberryquicksand June 15, 2013 — 9:20 pm

    Reblogged on http://strawberryquicksand.wordpress.com/ . My husband and I are always discussing what to do with our organs if we die.I want to give them away freely as I know a number of lives can be saved by one death. I am actually on our Australian organ donor register. My husband is not. He thought he was but he has to go online to update his status. I cannot believe that someone is denied the chance at live due to their age, not their illness status. Best of luck – now she is on the waiting list hopefully (and sadly for whomever will lose someone in this process) she will receive a lung and go on to live a long and prosperous life.

  9. I won’t hold it against you for liking Obama, your view might change if he was the leader of your country..=)
    Good for you to be an organ donor, my wife is finally going to change her mind and become one as well, she was of the mind “What if you need it when you go to heaven” lol I believe if I can save a life after I have died then all the better. This little girl got her lung transplant this past week. I don’t mean to sound cold or unfeeling but the government should have stepped up. How many people are awaiting a transplant who have knowingly damaged the lungs they were born with by smoking? This little girl was born sick so in my mind put her at the top of the list and hope for here to have a long life.

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